"It seemed to us that we kept the disease under control, but the second concomitant diagnosis – liver cirrhosis, complicated by portal hypertension, pulled the rug out from under us. Again pain, despair, understanding of our own helplessness", mom tells. Girl’s father lost his health working hard physically, earning on another day of his daughter’s life, and got a disability, now only mother can work. But the main Khrystyna's disease – cystic fibrosis – does not allow any treatment interruptions. Both equipment and medicine are needed right there and then, regularly. And they are very expensive. Help now to make a vital supply for Khrystyna.
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"He has got into the hospital with a complaint about difficulty breathing through the nose caused by mucous purulent discharge and polyposis, and a dry periodic cough", it became clear that Sasha needs not just a powerful inhaler, but its special model, the only one that helps patients with cystic fibrosis and such complications. Its price is also "special" and is simply not affordable to an average family. Sasha has been living with his illness for already 10 years – from birth – and until now his condition has been quite stable; now the boy needs intensive and proper treatment to get out of exacerbation.
Preschoolers Nastusya and Timofiyko, schoolchildren Sasha and Vitaliy, students Denis and Yana – what unites them? All of them were born with a genetic disease, cystic fibrosis. This is a rare disease, which is strikes, first and foremost, in the lungs. Abnormal thick mucus blocks the lungs, causing severe infections that provoke obsessive coughing, pneumonia, bronchitis and other complications.
DO IT is a charity project of HR Network company aimed at providing equipment for Ukrainian hospitals, where children and adults with respiratory problems receive help. Now we are opening a new project for the pulmonology department of the Khmelnitsky regional children's hospital.
"Currently, I'm completely dependent on the oxygen machine. My lungs are so damaged that they couldn’t breathe themselves. The disease drives me to despair, but I have my father, and he always supports me, we fight for life together", Vania, who is almost 19, writes about himself. The disease is progressing and today the standard oxygen device is not working – the new one with the increased power is required. Vania needs our help to breathe.
Bright light hurts the eyes, something rattles all the time, it's cold and laying is not comfortable. This is how the world meets the Preemies, their first home is a plastic box - the incubator. The first bed of a prematurely born child is towels and cloth, they feel cold, it is loud all around and it is scary. They'd be better off being wrapped in mother's embrace. Unfortunately, sometimes the child has to stay in the incubator for a long time and that embrace is only scheduled and short time.
She was adopted by a small healthy beard, and a month later the doctor said: "Your girl is a cerebral palsy". But Mother Galina – a courageous woman, 10 years old was waiting for a child and did not break. Massages, rehabilitation, medical physical education, sessions with a speech therapist, psychologist, classes in the swimming pool, hippotherapy. Everything that can be done to treat Maryna, my mother tried to do. But it all costs money.
Bohdan is one of about 50 people in the world with a rare genetic pathology – Opic-Frias syndrome. The disease is extremely difficult, which can not be cured, but the consequences can be corrected. A sixteen-year-old boy with a height of one and a half meters and weighing only 35 kilograms. The disease manifests itself in the form of an underdeveloped body, namely in the deformation of the chest and the stop. Due to the slow growth of the tendons, the muscles of the hands and feet of Bogdan wipes out the tension. In addition, the child is poorly seen and wearing hearing aids on both ears.
Prematurely born children require the continuous, round-the-clock monitoring after their state. In fact, by virtue of immaturity of organs and pathologies at any time, there can be (and arise up often!) apnoe (stops of breathing), critical violations of cardiac rhythm, cramps which can make off death.
The Department of Pulmonology for 60 beds, hospital oxygen is supplied only to one room; there are only 2 oxygen units for the patients of other wards. "How do you handle?" we ask. "We carry the apparatus from patient to patient, in turn. It often happens that dyspnea is present in many patients at the same time, then we breathe for several hours, and then we take it and pass it on to the next serious patient, and so all the time." Can you imagine this - the queue to breathe?
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