Misha Nikolayenko from Sumy region for his seven years took more antibiotics and other pills than another person in his life. And all because Misha was born with a rare disease that deprived him of any immunity. Any virus or infection "clings" to Misha instantly and is then treated long and hard. What he just did not hurt over the years. Medicaments, injections, droppers, and sometimes operations are constant companions of his childhood, inextricably linked with hospitals. So in October last year, the little boy was again in the children's ward, now with lymphadenitis. Doctors operated on the lymph node.
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Little Vadym often smiles. At first glance, it is hard to imagine that the boy is hurt and hard, but it is. Vadim has cerebral palsy – double hemiplogy, spastic tetraparesis, persistent motor disorders in combination with impaired vision and speech. The boy has been sick since birth, and like no one knows what the thirst for life is. If not for her, who knows, the baby would have survived. The umbilical cord wrapped around the boy’s neck, and he almost died. Having been born, Vadim was blue, he did not cry...
Mykyta and Glib are twins, and all of their 5 years of life struggling with cerebral palsy. Earlier, the boys were engaged in rehabilitation by the method Vojto-therapy in the Czech Republic, they are now undergoing rehabilitation in the Ukraine, in the Center for physical rehabilitation "Step by Step". The boys held through a lot, but treatment should continue.
Danya has neyrosarkoma - a malignant tumor on the leg. Treatment in Ukraine hasn’t brought any positive results. Doctors offered two-year child amputation of the leg – in our country there is no possibility to undertake something to prevent metastasis. During the examination in Turkey, local doctors saw an opportunity to save not only his life but also the leg. This requires a complicated operation and chemotherapy. Cost of services in Turkish hospital is 30,000 dollars.
Yehor was born in June 2009. And already from the first minutes of his life, everything was not right. The lungs of the child did not fully open, began the hemorrhage in the brain. Doctors make a serious diagnosis – internal hydrocephalus – it is a complex disease when the child's brain accumulates excess spinal fluid, which must be forced out through a special shunt.
Our story is about a little charming girl named Mariia. The girl was born at 29 weeks of pregnancy with a weight of 1 kilogram and 450 grams. During the first 7 days of her life, Mariia was in intensive care in Sumy, the condition of her state at that time was stable. But what happened next was that nobody could even imagine that living in the 21-st century could still be a reality: the electricity was cut off as a result of an accident.
Sukhoruchenko Mykhailo was born on September 8, 2009. He was born without skin on the right leg, the so-called "socks effect", that is mean that skin was not exactly along the perimeter of the toe. Misha's mother immediately realized that this is a terrible disease, which took away her first son, who lived only 2 weeks. Mom knew one thing, that none of the doctors know anything about this disease. She was told that they were the first, and if anyone was born with this disease – no one survived, and indeed, there were no records of such patients in the state, but that did not mean that they were not!
Rustam is 16 years old. Throughout his life, Rustam suffers severe pain. Every day for several hours goes on unbearable dressings. Rustam is a baby butterfly. His diagnosis is bullous epidermolysis. The boy's skin is so fragile that even mom's caress can harm him!
Rustam was born with a shocking rare diagnosis. Neither parents nor doctors were sure whether a boy would survive. No one gave a guarantee that a child would live up to 2 years old.
Mother's son, mother’s joy – Zhenіa. He is seriously interested in cars, likes to dance and sing together with his brother and to read books with his mom. "I call him sunshine because he always smiles that way," says mother Olga. Zhenшa is smart and playful, and a serious illness prevents him from living as actively as he wants. He has to spend a lot of time on daily procedures. Also, the baby is gaining weight poorly, is not developing well, because the family is not able to provide everything necessary for treatment – it is too expensive. However, if we help to buy good-quality medical equipment, supplies, and nutrition, Zhenіa will have more time and strength to live the usual life of a young boy.
"The wounds that Misha receives are equivalent to the burn of II-III degree, this unbearable pain accompanies my son all his life, but we have learned to live with it," says mother Xenia. "When Misha wants to run, jump, play ball – he just tries not to pay attention to the pain and seeks to feel the joy of childhood. He is very strong in spirit, and despite such merriment, I always notice on his face that he has a wound, but he continues to play and assures that there is no wound, he smiles sweetly to me to assure of the truth of his words...".
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