Lyonchik and Lyonushka – so affectionately call his parents. He is 5 years old, but so far he speaks only individual words. He is five, but in his family, he is 4 years old. Prior to that, he lived in the Krivyi Rih Children's House. In June 2014, he met Yulia and Vadim, and in July he became their son. And in the autumn after the examination, the audiologist, without particularly choosing the expression, told mom and dad: “Your child does not hear. He will lag behind in development and the boarding school shines for him".
239 781 644 UAH
HEALTH, EAST (10 of 122)
675 747.39 UAH - reserve fund Health
UPD: Ministry of Health of Ukraine has paid for the operation for Matvii. You can find more information on the project blog.
The parents have been waiting for Matvii for the long 14 years. The treatment and the players couldn’t help them. So Kateryna and Yevgen decided to adopt the baby. This way also turned out to be very difficult but finally, husband and wife found their son, and small Matvii acquired his home and loving parents. Mother and father doted on him, but their happiness lasted only 4 months. Once the boy has got a fever, analysis result returned a verdict: the leucosis. Only bone marrow transplantation could save him.
Quite recently, Nastia had an ordinary life of modern teenager – she studied at the 2nd grade at college, played volleyball, communicated with peers and parents pleased with her success. Nothing threatened. And even when the first symptoms of the disease appeared: enlargement of the liver, lymph nodes and dermatitis, which a girl lived since 2012 with, did not give occasion to worry about it. However, in a moment, lives of the young girl and her family have changed – after the medical tests at the hospital Nastia was diagnosed lymphomatoid granulomatosis, variant of nodular sclerosis.
Little Solomiya is one year and month old. And that is a miracle. Because a year ago, the doctors prepared her mother that the baby would hardly stay long in this world even for six months: her kidneys are underdeveloped and do not fulfill their functions. But, contrary to predictions, Solomiyka lives and fights, giving hope to her parents. To undergo the dialysis every day, she and her mother live in Kiev, far from father and sister. Unfortunately, that is just a temporary solution. Baby needs a kidney transplant from an unrelated donor. The price of Solomiyka‘s life is 60 000 dollars.
Recognizing the diagnosis is the path to this is long and difficult if we are talking about orphan (a rare) disease. Without a diagnosis, it is impossible to prescribe a treatment that will deal not only with the symptoms but with the cause of the disease. For 7 years, doctors have not been able to determine what is the root of the ills of 7-year-old Andrii: developmental delays, problems with blood vessels, joints, and heart. To confirm the diagnosis, you need an expensive laboratory test in Germany.
Everybody knows the feeling when they pant because of the snuffle, when you can’t clear the throat during the bronchitis. These feelings feature marginally what the patients with cystic fibrosis are experiencing when the usual expectorants can’t help. Brothers Dmitriy and Artyom Semenihin need Pulmozyme to breath. Otherwise they will be dying painfully suffering from the cystic fibrosis.
Imagine that all your life you have to breathe through a mask of two dozen thick layers. It cannot be removed, cleaned, changed. Periodically you are stifled with cough that cannot be stopped for hours... That’s how Vladik Bogomazov lives for 10 years. He is sick with cystic fibrosis. Every day the infection devours the lungs and breathing becomes harder.
Vladik’s life has just begun and he does not know how bright the world may be, which colors a rainbow has, how warm the Sea of Azov is in summer. And he can miss all of it in his life because the little heart of the child is very weak and needs urgent help! The boy was born with a cardiac anomaly – atrioventricular communication, with which the boy might live 5 years at the most if no surgery is made.
Of the 2.5 years of life, almost half are in intensive care, 10 heart surgeries, multiple severe infections, days in the hospital are more than days at home. Lungs didn’t learn to breathe well. For the first time, the baby was able to be taken home for the first birthday - along with an oxygen device operating from an outlet. You won't connect it in the train, you often have to go to the hospital, and every trip is not for the weak-nerved: the lips are blue, the face is white, the baby suffocates. The sunny baby needs a portable oxygen machine so that he can breathe wherever he is.
"My dear beautiful lad! I will do everything for you to become healthy and strong", so when there is an obstacle to the health of the child, Mother Tatiana says. And he thinks that everything will come true. During pregnancy, Mom suffered from acute respiratory infections and this was a risk to the girl. Therefore, doctors are determined to stimulate the contractions and as a result the girl at the 35th week with a weight of 1700 g appears on the light. With a lack of weight, a prematurely born baby immediately gets to resuscitation. There it is connected to the device of artificial respiration, because it is impossible for the baby to breathe independently.
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