The girl on the photo is called with the beautiful name Melania. She is 13 years old. She speaks fluently English and German, independently learns French, Polish, Belarusian. She is interested in art and music. Melania loves to learn. She is a favorite among teachers and classmates. She dreams of becoming an actress, so she goes to the theater club and vocals at the school. But the obstacle to the dream was the diagnosis – cerebral palsy.
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Dima is 7 years old. He dreams of growing up and becoming a traveler. His dream has no place for the diagnosis of cerebral palsy. Dima is a fighter. Rises falls and rises again – rarely cries and does not notice bruises. He underwent 4 castings. Constantly walks in orthopedic shoes and orthoses. For six years wears glasses. In early March, he had 3 surgeries. Dima is a refugee from Donetsk. For four years he lives with his grandmother in the town of Svyatogorsk in the building of a boarding house, which was given to IDPs to settle.
Polina is a small girl who dreams about walking. Everyday she tried to get up from the sofa and to walk. But as a result she falls down and get bruisers on her cheeks. But she doesn’t get afraid, she desperately wants and tries to stand up and to help mother, to show her doll or just to kiss. Polina is stopped by attacks, which every next time are stronger, the baby is frightened and it is difficult to achieve a dream.
Masha is the first, the only and very long-awaited child in the Novodolski family. Since birth, Masha fights for life. Pregnancy coincided with the hostilities, which took place just 15 km away from native home. This could not but leave its imprint, stress led to the threat of interruption. Masha was born at 38 weeks, a beautiful, but very little girl – only 2.0 kg.
Oksana is 41 years old, 3 years ago she became a mother for the first time. Mother of Zhenya, to whom at birth doctors did not give any predictions for the future. Oksana really misses her favorite work, but now her main business is to be Zhenya's mother. Behind is the shock from plenty diagnoses. The struggle for life is won, the baby will live! Now only routine daily hard work is needed, so that Zhenya will develop, so that he will be able to sit on his own, to walk, to to learn self-service skills.
Eve sits at the table and colors a funny picture. The girl is 11 years old and she is absolutely no different from her peers. We visited Eva in a rehabilitation center where she is undergoing treatment. Why does she need treatment? The girl hardly gets up from the table and we see how, in the literal sense, the earth moves away from under her feet.
Polina is 7 years old. She is a cheerful girl and a big talker. At first sight, Polina is not much different from other babies, but a hard corset that compresses her body and does not allow the spine to fold in half, and a wheelchair shows that the child is "special." Polina's everyday life is a daily hard struggle with SMA, but in this fight, there is always a place for smiles, joy, and laughter. Children with SMA do not need pity, they need support, attention, and help.
"I dream about the only thing: that she will walk and say the word "mother", Polina's mom can hardly hold back tears. Her Polina is 6 years old. The girl likes to look at books, play with sound toys and listen to music. Baby is very tactile and tender. She aims to communicate. But Polina has a developmental delay since birth due to a diagnosis. The girl does not walk and does not speak, fine motor skills are poorly developed, she cannot fix attention for a long time.
"The medical examination revealed that Misha should be monitored at the Transplantology Institute and should be put on a waiting list for a liver transplant," the beginning of this year was more than worrisome for a small family from Lisichansk. The doctors give six more months for monitoring. In the interim, Misha needs to take medicines that support liver function and to gain more weight – it's far from being normal and in the view of looming serious surgery, he needs to gain weight the sooner the better. Would you please help the boy?
Vika was diagnosed with cerebral palsy and Dandy-Walker syndrome almost immediately after birth. She was born prematurely, could not breathe by herself, survived resuscitation. The girl did not eat, often stopped breathing. No one knew if she would survive. Today Vika is 11 years old, and she still struggles with the diagnoses through which each movement is forced to fight.
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