Misha Nikolayenko from Sumy region for his seven years took more antibiotics and other pills than another person in his life. And all because Misha was born with a rare disease that deprived him of any immunity. Any virus or infection "clings" to Misha instantly and is then treated long and hard. What he just did not hurt over the years. Medicaments, injections, droppers, and sometimes operations are constant companions of his childhood, inextricably linked with hospitals. So in October last year, the little boy was again in the children's ward, now with lymphadenitis. Doctors operated on the lymph node.
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Misha Nikolayenko was born with a very rare disease - granulomatosis. With this disease, the child’s immunity is practically zero and there is practically no resistance to infections. The life of a child with this disease is accompanied by huge doses of antibiotics, antifungal, and antibacterial drugs. In August, Misha and his mother went to the Kyiv City Children's Center for Clinical Immunology, where he is seen by specialists. There he passed tests for myopathy and with his mother they are waiting for the result. In October, Mishutka fell ill again.
Daryna Ogilko will soon turn 4. Three of them, she is fighting non-Hodgkin's lymphoma. Hormones changed the face of the child beyond recognition, but they cannot be canceled, because wounds immediately appear on the skin. These are manifestations of the chronic graft versus host reaction. The only treatment that can help is a course of photopheresis, which is not available in Ukraine. In early childhood, a girl found a tumor on her head. Soon, analysis showed that it was an aggressive B-cell lymphoma.
"The inhaler broke down so that it could not be repaired in the workshop", writes Kira's mom. I check: indeed, the girl received this device from us 3.5 years ago. The simple model met the needs of the baby, but during this time it runs out of resources, they work longer rarely. But the inhaler for a person living with cystic fibrosis is an item of basic necessity, the patient begins to suffocate without daily procedures. So it's a matter of urgency.
We convey words of gratitude from Eva's parents to everyone who helped the girl with the first operation. The eye has been successfully operated on, and the joys of parents have no boundaries! "The positive results were already at the first examination of a specialist," says the father of Eva. "We heard the long-awaited: vision has improved! And the daughter’s words that the eye began to see better give hope that she will have a long-awaited good vision".
The situation with pediatric cardiology is catastrophic. 51.67% of children (i.e., children during the first 28 days of life) who have a complex form of congenital heart disease die.
Even from simple forms of heart defects, 42.3% of children die. 30% of children are discharged from the hospital even without suspicion of a terrible diagnosis. Half of them die. Every year in Ukraine, more than 800 children die from cardiovascular diseases.
Our goal is to change that!
"We really need your help", Julia, the girls' mother, writes in her email to us. For the last 15 years, the most important thing in her life has been fighting for her two daughters. Sisters Lera and Sasha were born with a serious genetic disorder. To keep this disease in check and not to let it destroy one's body, one needs a great deal of effort, work, and money. Some of the medically necessary things are paid for by the government medical programs, some of them Julia pays for, but it is impossible to afford everything without the help of caring people. When one child is seriously ill, it is a difficult situation; when both children are seriously ill, the situation is twice as difficult. Please help us support this family.
Maksym likes to run around, to play games and construction toys. The boy dreams of becoming a train driver and traveling the world. So, he was happy to go to school to acquire new knowledge. But the constant problems with the eyes which appeared a year after his birth did not allow him enjoying life to the full extent. For six years (!) the boy was treated for different diseases – and only then a brain tumor was detected.
Diana and Mykhailo were born deeply premature by cesarean section and immediately went into intensive care. The twins spent 2 months under a ventilator, then the same amount of time in the second nursing stage. In the end, they were discharged home in satisfactory condition.
Misha Nikolaenko is a naughty and cheerful little boy from Sumy region. During the time passed from the publication of the last project, this boy grew up, at the end of January he turned 6 years old. Like all boys of his age, he loves cars and races, he drives rapidly on everything that rides. Misha loves to "chemize" (as he says): mix everything that comes to hand. "He counts up to 100 and reads by syllables", says his mother.
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