Margaryta is 6 years, and for 6 years she has been struggling with a terrible disease that came into the world with her, and does not allow her to live fully. Children such as Margarita are called "butterflies", in medical language their diagnosis is "bullous epidermolysis". This disease is considered incurable, it mercilessly affects human skin, the slightest touch causes wounds.
302 649 409 UAH
ICF "Center of social projects of the future"03035, м. Київ, Солом’янська пл., б. 2, офіс 906
Mission ICF "center social projects of the future" - the creation and implementation of modern, active and effective social projects to address community social projects to address acute social problems of regional and national level. Development and implementation of partnership programs for non-profit and commercial organizations.
Tel.: +38 (044) 248-80-86
When Viks was 2 years old, she was diagnosed with neurosensory hearing loss. What does it mean? This pretty 9-year-old girl hardly hears. How does this affect life? Almost all spheres of a girl's life suffer from this: she has considerable difficulties in communicating with people, with language development, with learning; she cannot be left alone, because she simply cannot hear the approach of danger! Hearing is an extremely important sensory organ for humans, and nature has endowed it with it.
We are all waiting for return to normal life after quarantine! We will return to our places of work, study, walks and rest. Unfortunately, the end of quarantine will not signal the end of the fight Covid-19. To date, educational institutions are in dire need of providing their students and staff with coronavirus self-defense. Ivano-Frankivsk region is among the leaders in the spread of the virus. And the Kolomyia Lyceum (Ivano-Frankivsk region), which has up to 600 students, is in dire need of providing its students with self-defense after quarantine.
Today's times teach us to not stand aside the problem the whole world has faced. Each of our actions depends on whether the pandemic of the virus crown will spread further or reduce its rotation. Each of us is responsible for this. And the best protection is to provide the whole country and every person with the necessary materials that will protect against the entry of the virus into the body, especially those with weakened immunity.
We are all waiting to be able to return to the normal life that Covid-19 has taken. This infection is spreading on the planet, the number of sick people is increasing every day, and we do not know when it will end... But we know for sure that we cannot do nothing. Today, our country's hospitals are the hottest battlegrounds that must be provided with everything necessary to defeat the virus. Unfortunately, materials and equipment are sorely lacking, everything is needed.
Little Nika was diagnosed with cerebral palsy in the first days of life. Even before the birth of the girl, Mom Lesia was advised that she abandoned the baby because of the high probability of such a diagnosis. "But how can you give up your babe?", only this question popped into my head. May 4, 2016 Nika was born into this world. Her name symbolizes victory, and from that very first day, they began the struggle... Resuscitation, intensive care, planned hospitalization, massages, occupations in the pool, speech therapist, hypo-therapy, rehab... It seemed that there was no end to it but you cannot lower your hands, and what joy and happiness fills your soul when victory makes you aware!
Dania Bachyshev is a young immigrant from the Donetsk region. He is 17. A serious genetic disease – Duchenne myopathy, a severe form – continues to kill our boy! Dania is a bright and courageous guy. In 2017 he graduated with honors from 9 classes, received a red certificate. He continued his studies in 10th grade as well. Despite the fact that a terrible genetic disease made him completely motionless at the age of nine and strangled every day. Dania has a lot of plans for the future, despite all the predictions of the doctors related to his terrible genetic disease. Our boy has always been inquisitive, he loves life, loves people and all life, in spite of any difficulties and trials of fate. In general, Danya is a big optimist, and in life, he always takes a philosophical attitude.
Friday. February 10, 2017. I’m very good in mom’s tummy. From the first days, mom called me Kolenka. Every day I hear that mommy loves me. And waiting for a meeting. I grew up already big. I am already 40 weeks old. At the last ultrasound, we were told that my weight is 3950 grams. Mom is so happy. I didn’t want to be born yet. But ... They decided for us. Doctors began to stimulate labor. It was very hard for me. I began to choke. I drowned in water. There were no more forces. I'm stuck in a basin.
In her 14 years, Lisa has completed over 60 treatment courses at rehab centers and spas. In 2014, she was operated on by the Ulzibat method. Currently, Lisa walks on her own, with shortened right extremities, impaired motor function of the right hand, completely missing fine motor skills of the right hand. Mom does her best to keep Lisa healthy.
Have you ever played in-game when nobody speaks? How hard is it to say nothing, right? Did you hide your eyes and try to walk in total darkness? Have you hit anything? Did you cover your ears so that you could hear nothing? Was it scary to be in complete silence? But little Dmitry lives this way forever, he was born deaf and just can't hear the outside world, the voice of his mother and his surroundings, and he doesn't even imagine how to live otherwise… Children who are diagnosed with "hearing loss" and the like, adjust to their "inaudible" condition in sync with their adulthood, and the more difficult it becomes for them to develop their hearing and speaking skills. And it is possible to develop it and it is necessary! Hearing aids help in this.