Every year in Ukraine almost 5,000 babies are born with heart failure, which develops in the mother's womb at the same time as the birth of a new life. A third of them from maternity hospitals are discharged even without suspicion of the disease, while in the first hours or days of life the crumbs should have been on the surgical table. So 800 of them, then we lose.
СF "Your Support"Київ, вул. Мельникова, 83-Д
The Foundation "Your Support" was created with the aim of helping seriously ill children and orphans in our country. We come to places where help is especially needed, and first of all to those who do not receive support, unable to overcome bureaucratic obstacles.
Tel: +38 (044) 221-11-63, +38 (094) 821-11-63
Bohdan is one of about 50 people in the world with a rare genetic pathology – Opic-Frias syndrome. The disease is extremely difficult, which can not be cured, but the consequences can be corrected. A sixteen-year-old boy with a height of one and a half meters and weighing only 35 kilograms. The disease manifests itself in the form of an underdeveloped body, namely in the deformation of the chest and the stop. Due to the slow growth of the tendons, the muscles of the hands and feet of Bogdan wipes out the tension. In addition, the child is poorly seen and wearing hearing aids on both ears.
The appearance on the world of 28 weeks of pregnancy with a weight of 1400 grams for a baby does not carry anything good. Reanimation is the first place where it falls. Yaroslava himself did not breathe, did not eat, was connected to the apparatuses. It was impossible to predict doctors, because the lives of the children were on the verge. Three months in intensive care and the girl started to grow a little. There were forces to breathe and eat milk on their own. Mum with a kid is discharged home, but warns that the child may have cerebral palsy. And this was done, after a year the doctors were unanimous in the diagnosis.
"My dear beautiful lad! I will do everything for you to become healthy and strong", so when there is an obstacle to the health of the child, Mother Tatiana says. And he thinks that everything will come true. During pregnancy, Mom suffered from acute respiratory infections and this was a risk to the girl. Therefore, doctors are determined to stimulate the contractions and as a result the girl at the 35th week with a weight of 1700 g appears on the light. With a lack of weight, a prematurely born baby immediately gets to resuscitation. There it is connected to the device of artificial respiration, because it is impossible for the baby to breathe independently.
Almost 5 years of living with pain and suffering. Girl Tony does not hold her head, does not sit, does not walk, does not say, does not add – in a word, cerebral palsy with a bunch of additional diseases. But there is a chance – rehab. Only they can help a girl to overcome all the ailments. Complicated births, oxygen starvation, and as a result – an emergency cesarean section. The baby was born alive, her heart stopped fighting.
He is already tired of fighting his own body... At first – seizures, dizziness, weight gain... Then – paralysis of the limbs, and now the third stroke. His body attacks a systemic lupus erythematosus. And the struggle with him has been going on for several years now. For the 16-year-old Artem Harkavenka, endurance and courage are not empty words. He, a diligent guy, previously professionally engaged in sports - power acrobatics. But now he does not dream of medals and accomplishments. He wants to live...
Tiny corpses, wrapped in drops and surrounded by monitors, the least weighing several hundred grams. Their life entirely depends on life support devices, because they often do not breathe and feed themselves only through a probe. It is exactly this way that every day in the intensive care unit of the Institute of Pediatrics, Obstetrics and Gynecology of Ukraine, dozens of children, who are simply not lucky enough to be born healthy, have a chance to have a full-fledged childhood. Every month at the institute there are 150 infants with developmental defects, 40 of them fall into resuscitation, 15 – with a critically small weight of 500-700 grams. Such children often develop complications after surgery, viral or bacterial infections. Only those who are expensive with antibiotics can control.
Since childhood, I have dreamed of having a super-force that will make all children of the world healthy and happy! Therefore, now I want to ask you something:) Almost every day I come to the children's resuscitation Institute of Pediatrics, Obstetrics and Gynecology. Here in kyuvazah, under tubes and sensors are kids with the most severe pathologies... They just came to light and they have to cling to life.
Mom would have to wear her in her arms and stroke over the tummy, which is unbearably hurt, while Katrusia lays in bed alone. She was born at once with two serious diagnoses – intestinal obstruction and Down syndrome – and the sick person automatically became useless. Her wealthy father, at work, told her colleagues that her daughter had died, forbade her wife from going to the hospital and did not leave a penny for her life's struggle, but she had to get caught up with him.
He dreams of becoming an athlete above all else. Though for him any physical activity is not a simple matter... The hands on the feet of the guy diminish the tension, the muscles do not grow, and the bones of the skeleton grow. This is the cause of the daily unbearable pain of the boy. Good, sensitive, gentle boy Misha – a nurse at a boarding school. He has cerebral palsy and spastic diplegia. Misha loves sports, he throws a spear, pushes the kernel. It is physical achievements that he wants to prove to everyone and himself that he is healthy.