"Mom" is the first word of the child. Every mother wants to hear these cherished words from her child. For almost 5 years, this has been the most cherished desire of Bogdan's mother – to hear how her little son speaks and to see how he runs. All these years, working hard, through the tears, through pain, Bogdan earnestly achieved success in fighting his terrible cerebral palsy. Thanks to caring people, the baby has already passed 4 rehabilitation courses.
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There is a wonderful girl named Eva. She is 11 years old and she is practical doesn't differ from her peers... While sitting. But walking is given to her with difficulty. Eva is from Donetsk, where she lived until June 2014. Living there, Eva was constantly treated both in her native city and throughout Ukraine. Because of the war, the family had to move to another city, but the treatment did not stop. In 2017, Eva underwent a complicated leg surgery, after which rehabilitation became even more necessary.
"Your help is very neede!". How often do we hear these words and pass by... There are a lot of children with terrible diagnoses. Many of them need help. But behind every such cry for help is a real child. Who is waiting for help and believes that adult uncles and aunts will certainly help! Zhenia is one of these kids. He is waiting for help! And together with him, hope and believe his parents, that a dream of a healthy childhood will come true!
This is Masha and soon she will be 4 years old, she is a very nice person who always smiles. Despite her difficult fate, our princess smiles all around, and thereby gives hope that she will succeed, and she will achieve good results, and we will definitely see her first steps and hear the first word! All other parents usually see in their children at the age of one year, Masha's parents are ready to wait as long as it is needed.
Baby Nikita was born on 27.07.16. The child was welcomed and long-awaited. Parents went a long and exhausting way to finally see the two treasured stripes on the test. Family happiness knew no bounds! However, the challenges have only just begun. At 19 weeks, the threat of pregnancy loss, emergency surgery, conservation happened. Before delivery, the mother did not leave the hospital. It was scary and hard, but the hope that very soon it would all be over did not leave. The son was born at the 36th week by emergency cesarean section.
Charming Dasha in a beautiful dress on a wheelchair played Mary's role in the inclusive play of the ballet Nutcracker. Behind the scenes, there was a daily titanic work, orthopedic remedies, medications, injections, amino acids, all that holds back SMA – a difficult genetic progressive disease. It is impossible to cure but is possible maintenance of the body and desperate containment of the disease so that it does not progress quickly. This way of life of the child – incurable, expensive and lifelong.
Today on the operating table lies little Annie. Her blue eyes are firmly closed, the anesthetic has taken effect. The doctors' attention is fixed on the read-out of the monitor, it shows her vitals. Her young life is completely is the doctor's hands. The monitor flickers, it is old and prone to failure, another complication, one that could prove fatal… Will it give out now? Thirty years is a long service and it has done that and more. It will fail, only a matter of time… it is only one they have still working in the re-animation ward of this children’s Hospital. Little Annie is only the first patient for today, there are many others.
Dasha will turn 9 years old soon, eight of them, she is struggling with a rare progressive disease of SMA – spinal muscular atrophy. It is the disease that takes a person's ability to walk, stand, sit, eat, and even breathe; it literally eats up muscles. Before Dasha was 1 year and 2 months, like all children, she could squat and stand on her own, bending down and picking up a toy, but now these skills have been lost. Gradually all muscles of the body atrophy, paralysis of the locomotor system, heart and respiration occur.
"Hello, my dear helpers! This me again – enchanted Princess Nastia! Most recently, thanks to you, I returned from a magical country, where wonderful wizards and fairies helped me to remove the spell from my legs. Unfortunately, the spell was not completely removed, but in spite of this, we managed to remove several stages of the spells, and now I can stand on my legs and stand on all fours.
This name of this cutie is Polina. While most children dream of new toys for the holidays, Polina dreams of being able to walk, play with friends, just be. Polinka was born in 2011. And throughout her life, due to a rare genetic disease, she has a muscular weakness. She has one broken gene in the chain of her DNA. The gene that affects the work of the motor neurons of the spinal cord and they, in turn, are responsible for the work of the muscles, taking away the ability to sit, walk, roll over, cough, swallow and, eventually, breathe. Polina inherited this breakdown from mom and dad.