"I dream about the only thing: that she will walk and say the word "mother", Polina's mom can hardly hold back tears. Her Polina is 6 years old. The girl likes to look at books, play with sound toys and listen to music. Baby is very tactile and tender. She aims to communicate. But Polina has a developmental delay since birth due to a diagnosis. The girl does not walk and does not speak, fine motor skills are poorly developed, she cannot fix attention for a long time.
ICF "Everybody Сan"Київ, вул. Біломорська, 1а
The mission – improving the lives of the most socially vulnerable segments of the population through their decisive action and popularization of the idea of volunteering and charity.
The main activities:
- assistance to victims of hostilities in eastern Ukraine;
- development of the health sector.
Kononovy family consists of 2 people. Mother Natasha and her daughter Masha. Girl's dad died 12 years ago. Masha is ill from birth. She was born on 8 months of pregnancy in a hard condition, was not able to breathe on her own. After prolonged artificial ventilation of the lungs, the child received swelling and cerebral hemorrhage. Doctors did not give any predictions. Miraculously, the child survived. Now Masha needs constant care, regular rehabilitation, and lifelong medication.
Little Victoria has a whole bunch of diagnoses. When looking at this smiling baby, it is impossible to even guess how much she suffers. While carrying her baby under the heart, every mother dreams that her child will be happy, draws his future in her thoughts, imagines their first meeting... A girl was born on the 33rd week of pregnancy with a weight of only 1600 grams.
Having once met Olexandra, it is impossible not to fall in love with this charming, cheerful little girl. So much positive and perseverance, intelligence and childish charm she has. She loves the whole world and the world loves her. The baby just bathes in love. She is loved by her parents and little sister, who is 18 years older; by teachers and classmates, by rehabilitologists and elderly ladies on the bench at the entrance; by dogs and horses at the hippotherapy. Sasha would be the happiest child in the world, if not a terrible diagnosis...
Artem this year went to the first grade. He is a very smart boy. But for him school is hard because he can not walk by himself. Because of the increased tonus in the legs, the child loses the balance, so it is not even possible to stand independently. But he is trying hard to be like all the other kids! Artem was with diagnosed cerebral palsy at the age of one year. Since then, the child and the whole family started a difficult life.
"Have I ever heard about this disease before? No… until my youngest daughter Polina was six months old. It was then when the diagnosis – spinal muscular amyotrophy – sounded like a verdict". Now Polina's mom knows everything about this insidious diagnosis. He knows that SMA is a rare disease. In Ukraine today live about 200 children and adults with SMA. She knows that every 40th inhabitant of the planet is a healthy carrier of spinal muscular amyotrophy, most often, not even aware of the existence of such disease, and especially what to do if it manifests itself.
My name is Shumeyko Kateryna. I have a degree as a lawyer, I am 29 years old. Running is one of my hobbies. I have already run a cjuple of half marathons and I manage The run club in Kyiv. This year I decided to run my first charity half marathon.
I run distance in WizzAir Kyiv City Marathon 2018 to help children with cerebral palsy.
My name is Lesya Firsanova, I’m 21 years old.
I have a degree of sociologist and I’m a creative person.
I like to take pictures and I’ve turned my hobby to the job. This moment I create content for social media. I’m also an activist of jewish youth organization «Hillel» and because of that I met many friends all over the world.
My name is Ilona Didenko. I am coordinator of educational programs Hillel Kiev and coordinator of Volunteer Community Kiev. I manage couple of projects developing youth, jewish community of Ukraine and me personally. I like good books, my friends, sea and tasty coffee. This year I decided to run the distance in WizzAir Kyiv City Marathon 2018 to help children with cerebral palsy.
My name is Ilya Ershengoren. I am a student, volunteer and simply a good guy. Every time I learn nothing new, like to travel, good humor and new impressions. This year I decided to run the distance in WizzAir Kyiv City Marathon 2018 to help children with cerebral palsy diagnosis.