Maksym spent almost a year at the hospital. All this time, the boy carefully studied therapies and the names of the drugs he was prescribed. That’s because he dreams of becoming a doctor and treating kids. All his games turn into healing processes and medical procedure. And his "patients" "have been treated and discharged home". Maksym is also at home now but needs one more examination – MIBG scan. In Ukraine, it is not available due to the lack of necessary isotopes. But this is the only examination for neuroblastoma that determines the effectiveness of treatment.
CF "Zaporuka"03022, Київ, вул. Васильківська, 30
Zaporuka Foundation has been supporting since 2008 families of children with cancer hospitalized at the National Institute of Cancer, at the Pediatric Department of the Romodanov Institute of Neurosurgery and at the Department of Hematology and Intensive Chemotherapy of the Western Ukrainian Pediatric Specialized Medical Center in Lviv. Zaporuka has organized and continue funding psychological service for the patients of these hospitals as well as rehabilitation service and has opened the Center Dacha providing accommodation for children affected by cancer.
"I can construct a lot of things and can fix them. But myself I cannot fix…". 12-year-old Viacheslav paints well, carves wood with fret saw and even began to earn his first own money. But suddenly he had a terrible disease – meningitis. A year later there was again the same diagnosis. As it turned out, the reason was a defect of the skull bones. The hole serves as the gateway for any infection – and if it not operated as soon as possible, next time Viacheslav may not recover... But his parents’ resources are extremely limited and without our help, they won’t cope.
Little Alipia got her name, not after her birth but after the surgery – in honor of the saint saving the children. The girl was born with spina bifida (incomplete closing of the spine) that had to be operated on immediately. Local doctors recommended one more surgery – to treat hydrocephalus. However, the mother did not have the money and the father abandoned the child. Now Alipia is at the Institute of Neurosurgery – and postponing the operation is not possible anymore! The woman asked for help as she has no one who could support her.
Sasha is a long-awaited son and dad’s dream. The boy was too big, so the childbirth was very risky for both the baby and the mother. After the birth Sasha had hemorrhage in the brain. And then everything went according to the standard – intensive care, medication, therapies. And it took more than a month. The doctors managed to save the boy but there was a complication of hydrocephalus. Now Sasha needs a surgery. And his parents need our help after long treatment.
Only fourteen days changed the life of the whole family. That’s the duration of the rehabilitation cycle that stopped the annual regress of Mariana’s physical condition. Even now her parents see striking changes – the girl expresses emotions, distinguishes between "family and friends" and "strangers", is more active, can better use her own body, eats and independently goes to the bathroom which previously was not possible without medication. But one cycle is not enough – she has to consolidate the achieved progress.
Mom and dad were waiting for the birth of a long-awaited child. The family has created the best conditions for their little son’s development. But the disease has made its adjustments. Kyrylo is now three years old. The boy spent the whole year with his mom at the hospital fighting the tumor. And now, perhaps, the worst is behind. If the examination in Italy confirms the success of the treatment. Unfortunately, MIBG scanning is impossible in Ukraine because of the lack of necessary isotopes. The price of 15 000 UAH is not very high but not after a year of exhausting therapies.
Easter is a holiday of victory of good over evil. So, the kids who are now at the hospitals are fighting against the insidious disease for their lives. Treatment is not interrupted on holidays, and not everyone can go home. Traditionally, each family prepares an Easter basket and a delicious table. One cannot do it in the hospital, and the families have other issues to take care of. However, it would be great to create an atmosphere of a bright holiday in each patient’s room for these days!
Karina’s successful surgery depends on a small part. In a week the girl needs to have an endoprosthesis inserted – an implant that will substitute the affected bone. The prosthesis is available at the National Cancer Institute. However, there is no special screw to attach it to the bone. This screw is individual and not included in the standard set. The cost of the part is more than 35 000 UAH.
Little Sasha spent half of his life fighting for it. He had been fighting to live and not to know pain and suffering. The tumor affected several organs, as well as bones. At the Cancer Institute, the boy had a complicated surgery. And now he needs to know: what’s next? The treatment will continue but according to which protocol? For the doctors to be able to make a decision, the MIBG scan is required. That’s the only informative examination in case of neuroblastoma. The Italian Clinic in Bergamo is ready to accept the child on April 17th; the price is 522 euros. But the young family who has been on treatment with their son for almost a year does not have this amount.
For every person, it is important to feel safe, to be able to cuddle up with loved ones. That’s especially true for children with cancer. They can do it at the Center Dacha, the only one in Ukraine. For 9 years Dacha has been giving its residents happy childhood memories and has been helping to overcome a serious disease. Dacha’s lobby is decorated with a symbolic tree of life on which every leaf is a warm reminiscence of all the house guests. And with every year there are more and more of such leaves.