Heavy disease – difficult rules, and there is so much desire to place life among them! The patients of our fund are girls and boys with severe liver disease of cystic fibrosis. Just to live, they have to make a lot of effort. This time, we want to buy portable inhalers, which will help them feel easier, not to be tied to their homes, to be free.
СF "Open Palms"Київ, вул. Полярна, 20, офіс 311
The Foundation works in the field of palliative care and provides:
- equipment and other type of support for children and adults who, due to temporary or chronic respiratory failure/oxygen deprivation are not able to breathe properly on their own. The Foundation’s operations include: a separate integrated program aimed at supporting children and adults with cystic fibrosis;
- equipment for pulmonology, intensive care, and other hospital units treating children and adults with respiratory and/or oxygen insufficiency, for hospices and palliative care units;
- advisory support for palliative patients (recognized as such that cannot be adequately treated) and their families on the issues related to pain killer prescriptions, home care, etc.
Vlad and Yaroslav are soul brothers and brothers in life challenges. The probability of getting broken DNA is only 25% for everyone; there are very few families having two children with cystic fibrosis. But Kuzovye brothers were among them. The family tries their best. But it is terribly difficult to provide everything for the treatment of one patient with a serious illness, and even more difficult for two. Mom Natalya kindly asks to purchase the equipment necessary to ensure the qualitative daily treatment for the boys. Help today so they can live tomorrow.
“Roman is 2 years old, and his pancreas practically does not function. The diagnosis is cystic fibrosis, the form is medium-heavy. This disease affects the lungs and digestive system. As of today the boy needs everyday inhalations, working on breathing equipment, special diet food and enzyme medicines as soon as he is practically has no his own enzymes. "Today I ask you to help our child", Mama Alexandra is very precise and concrete. She got hold of herself, studied all difficult rules of life with cystic fibrosis and is determined to fight for her son. And today they need help.
Liza is so joyful, full of enthusiasm and dreams. It is weird to write about her on the page raising money for serious disease treatment... Drawing, children's fitness, bicycle, and rollers. She likes to visit children's entertainment centers, to help her grandmother and grandfather in the household. It's all about her. Procedures in the morning and in the evening, taking a lot of pills, special food, and special exercises every day during all her life is also about her, about Liza. The girl was born with a serious genetic disease and she needs help to live.
Masha is only 6 months old and now she is one of the most serious patients with cystic fibrosis in Ukraine. Her mother called us from Cherkasy intensive care unit, and we were thinking together what to do. Masha has a very low weight. She is only 4.5 kg being 6 months old! Due to the main diagnosis shortly after the birth of Masha, they had to put the colostomy. Now it looks like the baby does not gain weight because of it, but it's also not possible to do the stoma reversal now. The doctors say she should grow at least up to 6 kg.
DO IT is a charity project of HR Network company aimed at providing equipment for Ukrainian hospitals, where children and adults with respiratory problems receive help. Now we are opening a new project for the Center for the care of patients with cystic fibrosis in the city of Rivne.
Despair, anger, weakness... When a child is born with an incurable disease, you experience a storm of feelings. But you need to accept the reality and to learn to live with it. Baby Angelina has cystic fibrosis – this disease affects the whole body, damaging the vital functions: food digestion, growth... breathing. With cystic fibrosis, people can live a long life, but all the necessary support is expensive. And the girl wants to live, to dance and sing! And the girl wants to go to the 1st class in September! And you need to be in time.
Maxim always says that he'll manage on his own, he says that others have a greater need. He rarely accepts help, and this might be the first time that he actually asks for it. This young man was born with a severe incurable disease and he literally has to fight for each day of his life since the moment of his birth, and this is quite an expensive battle. More often than not, he has to pay for his medicines from his own pocket – the state budget can't afford it, but he cannot postpone his treatments. The next inpatient treatment is scheduled for December, and now Maxim asks to help him cover the cost of IV therapy drugs crucial for his life.
8-year-old Vika doesn’t get on not only with her school but also with a series of her hobbies such as drawing, dancing, needlework... And very often she doesn’t manage with hospital too. She was born on 28th of September, 2010, then she underwent surgery operation when she was only 3 days old; she was a patient of intensive care unit for several times during the following years. Moreover, she has to undergo regular special treatment once for several months.
And again as a report. Chernigov asks for help. Asks us with you, for there is no time to wait. Today there are more than 700 children with asthma and 12 children with cystic fibrosis in the district, and severe pneumonia can happen to any healthy child one day. Anyone of them may at any moment need additional oxygen. Suffocation is bad, terrifying, especially when it happens in the hospital. Indeed, in the pulmonary department, there is not a single oxygen apparatus, and children are sent to the intensive care unit to "breathe".