The Department of Pulmonology for 60 beds, hospital oxygen is supplied only to one room; there are only 2 oxygen units for the patients of other wards. "How do you handle?" we ask. "We carry the apparatus from patient to patient, in turn. It often happens that dyspnea is present in many patients at the same time, then we breathe for several hours, and then we take it and pass it on to the next serious patient, and so all the time." Can you imagine this - the queue to breathe?
СF "Open Palms"Київ, вул. Полярна, 20, офіс 311
The Foundation works in the field of palliative care and provides:
- equipment and other type of support for children and adults who, due to temporary or chronic respiratory failure/oxygen deprivation are not able to breathe properly on their own. The Foundation’s operations include: a separate integrated program aimed at supporting children and adults with cystic fibrosis;
- equipment for pulmonology, intensive care, and other hospital units treating children and adults with respiratory and/or oxygen insufficiency, for hospices and palliative care units;
- advisory support for palliative patients (recognized as such that cannot be adequately treated) and their families on the issues related to pain killer prescriptions, home care, etc.
the program "Man needs a man", a special project: "letters of the angel" (friendly support for children who are being treated for cancer in the city of Kiev).
Kristina is 5 years old. She was admitted to the hospital with severe exacerbation - pulmonary hypoxia. The level of oxygen in her blood was 50% (normal - up to 90)! It is gradually raising now with the help of the oxygen apparatus in the hospital resuscitation. Kristina's mother says that the girl can't be transferred to a regular ward - as there is no oxygen devices in other departments. As soon as the oxygen unit is the only device to be used by all patients in the intensive care division, it can not be transferred temporarily with Kristina to a different department. Kristina urgently needs medical equipment for daily treatment at home and a package of special high-calorie nutrition because the serious illness has already damaged the child’s body severely and we must take a serios fight for her life.
Vitalik was a big strong baby when he was born – he weighed about 10 pounds – but within the first few days of his life, he started getting sick. Ahead of him were many weeks spent in intensive care units, choking and coughing till he turned blue... The doctors could not figure out what was wrong with him but kept trying, and he finally got diagnosed with cystic fibrosis by the time he was nine months old. "We have been fighting this illness for 10 years now. I don't want my child to die! He hasn't even been able to see much of life besides hospitals, medications, and IVs. Every day, we fight for his life, for every breath of air. Every single day my son has to do nine nebulizer treatments and take handfuls of medications. And when his oxygen saturation drops too low, he has to lie down and hook up his oxygen. All of Vitalik's young life is taken up by medications and hospitals. And paying for all this takes a lot of money, and we always come up short," Vitalik's mother writes to us, hoping for our help.
"Saturation, the level of oxygen in the blood, is 83, and it is ok as long as it remains like that. If it drops to 70, we will go to breathe in the resuscitation department," Ania’s mother briefly explains the situation to us. In my mind’s eye, I see them sitting side by side – mother and red-headed translucent Ania – and they make a decision again and again: is it still possible to endure now or not? Panting, but at home, or breathing freely, but on a hospital bed in the resuscitation department? Beautiful Ania has congenital heart disease and pulmonary hypertension. Recently, the condition began to deteriorate sharply and they had to collect documents in order to stand in line for transplantation. But you need to live before this event. Breathe.
DO IT is a charity project of HR Network company aimed at providing equipment for Ukrainian hospitals, where children and adults with respiratory problems receive help. Now we are opening a new project for the Center for the care of patients with cystic fibrosis in the city of Rivne.
Nastia, a second-grader, has had to grow up faster than her peers. She likes school, but she often has to spend time in the hospital instead, because she has a severe congenital disorder. At her young age of seven, she knows what it's like to fight for every single day of her life. Her diagnosis – cystic fibrosis – is an illness with which one can live for many years, but only if one has personal medical equipment at home, takes multiple medications every day, and does several sets of exercises every day as well. Her parents, unfortunately, cannot afford all the necessary medications and equipment.
UPD: unfortunately, Dmytro could not escape from the clutches of the disease. She was stronger and took the man. We offer our sincere words of condolences to Dima's family and thank all the UBB donors who supported him.
"It all started with a sudden high temperature. It's not terrible - with my diagnosis this is common”, I was thinking. But not this time. The disease recurrence led to a hospital - for the fourth time this year – I had to take expensive antibiotics intravenously and had an additional supply of oxygen. The acute condition finished, but I was still chained to the oxygen machine - I cannot go outside without it, I suffocate,” Dmitriy writes. But it is not the end, not a final verdict. The boy will be able to continue to have active life, if one can purchase a portable device.
How terrifying it is to know that your child win never become adult, never go to school, and never… with the serious and unhealable disease there are lots of "never". But we are still able to help one: not to allow a child to be left alone in intensive care. Let’s help Misha get back home to his relatives. His elder sister Nastya is waiting for him and their mother. It is hard for her too, since she is only 12 and her mother and brother are in the hospital.
Yaroslav is 22 years old. Formerly, a boy who's always been fond of reading, now – a young scientist, a graduate student of Kyiv-Mohylianka Academy Philosophy Department. Formerly, a sportsman, having managed to attain a senior degree in compound bow shooting, now – on the Ministry of Health's waiting list for foreign medical treatment funding: a boy is waiting for lungs' transplant. However, he needs to sustain his life till the moment when the necessary funds have been allocated. Now he needs to collect money for special nutrition that would maintain his physical shape just so that he would be deemed fit and eligible for the surgery.
She is very inquisitive and has a kind word and a heart for everyone. Animals are her particular passion, that's why she decided to become a veterinary, to treat and take care of creatures who cannot say where it hurts on their own. However, she herself needs so much courage, perseverance, and willpower to fight with a serious illness for her own life! Since her very birth, throughout 17 years of her life, Nastia has to perform a daily series of therapy exercises, procedures, and take a lot of pills. And now the time has come when she needs an oxygen unit as well to support her state, for her own lungs cannot operate on their own any longer.