My birthday is on the August, 3. I have everything. Friends, family, my beloved work, in which I am good, and those with whom I work are good too. I have my Calendate project, and my super team. I want to give my 31st birthday to the girl Nastia. She has cystic fibrosis, a genetic disease, a breakdown in DNA, from which no one is secured. Because of this disease, the fluids in the body become viscous, it becomes almost impossible to breathe. Together with cystic fibrosis, there are accompanying problems – with the pancreas, lungs, liver and so on. Nastia has all of them. The combination of diagnoses so harsh that we really do not know how much time Nastya has left. And we really want her to spend this time interesting and joyful. It's possible.
СF "Open Palms"Київ, вул. Полярна, 20, офіс 311
The Foundation works in the field of palliative care and provides:
- equipment and other type of support for children and adults who, due to temporary or chronic respiratory failure/oxygen deprivation are not able to breathe properly on their own. The Foundation’s operations include: a separate integrated program aimed at supporting children and adults with cystic fibrosis;
- equipment for pulmonology, intensive care, and other hospital units treating children and adults with respiratory and/or oxygen insufficiency, for hospices and palliative care units;
- advisory support for palliative patients (recognized as such that cannot be adequately treated) and their families on the issues related to pain killer prescriptions, home care, etc.
Two daughters, two mother’s suns, a double happiness for the parents! Double afterclap is to know that recurrent colds are only the top of the iceberg, only presentation of the dangerous genetic disease of cystic fibrosis. Both sisters have it at once.
Establishing a true diagnosis and correct daily therapy helped to stabilize the girls’ health, but at the same time posed an excessive task to parents: to provide not only a double supply of medicines for each day as soon as possible, but also to purchase immediately a lot of medical equipment. It depends on it for how long the girls can resist the illness, how often they will get to the hospital, will they become adults?
How can one live when most of the internal organs work on the verge of failure and may fail you completely? How strong must be the human will to wake up every day and overcome everything again and again? We, as onlookers, will never really understand that. We can only help. Now Nastya’s lungs breathe with great difficulty, and an oxygen apparatus is required to support her. Also, her organism is emaciated, and special high-calorie nutrition is needed. To assimilate it, Nastya needs insulin, because she also has diabetes… She struggles with all her might, but she needs help!
I am 32 on July, the 7th , and 11 years of my life I work as medical volunteer, and for the last 5 years together with the team of the Open Palms Charity Foundation I have been helping people to breathe. I saw and experienced what is to be short of breath when holding tight my little suffocating sister in the last hours of her life, how desperately she tried to breathe…
"They are smart, joyful, good, kind, open...", a mother can praise her little children infinitely! They are her most precious treasure, the greatest love and... the greatest anxiety. Both of them – the elder Roman, and the younger Sofiika – were not lucky in the lottery of destiny – both were born with a serious genetic disease of cystic fibrosis. This is not the fault of either the parents or anyone else, just so happened. But now, the whole family has to struggle for the life of Romchik and Sofia, and they need help in that.
"We kindly ask your support to pay for the after treatment for my son to become stronger and fulfill his life-long dream – to learn to walk without help and travel”, mum says. 19 years ago Alexandra's life was divided into "before" and "after" and all her dreams became the dreams for two people. Misha has a nasty form of cerebral palsy. If only one can imagine what a huge amount of work for him is literally every movement, every household skill, you would definitely call him a hero. But it is not enough to practice at home with his mother to move forward, to prevent backsliding. Intensive rehabilitation course in the special center is required twice a year. The nearest one is in April, but the mother is not able to pay for it.
Looking at Renata now, probably no one would guess that this beautiful girl can need any help. Though, it’s true. The child was unlucky at birth and since that time her whole life is a struggle. The girl she is now, she has made herself with hard work and patience, with the help of her mum and numerous rehabilitants. Now Renata is studying at school, can walk all by herself and likes to be vibrant. Every day she is working at her body at home, and two times per year she needs intensive classes in the Rehabilitation Center. The nearest course is very soon, but her mum doesn’t have money to pay for it.
"We are MAZARS UKRAINE, the company proving services associated with auditing, tax consulting and accounting outsourcing. Our story started in1940 in the west of France, and nowadays more than 20 thousands of our team members in 80 countries all over the world help our clients. For more than 10 years already we efficiently work in Ukraine, for the last 3 years we took part in the marathons. This is our first fundraising experience and we believe that we together will be able to give possibility to breathe to those who can’t do it themselves.
"I am Natalia Matsko, business project producer and event presenter. I have been doing sport since my childhood and I love running. When we run, just like in any other sport and especially in life, breathing is of great value. Breathing is a normal thing, it’s for everyone. Even a well-trained person cannot live without oxygen for more than 5 minutes. My goal is to run the maximum distance of the half marathon – 21.0975 km (13 mi 192.5 yd) in order to help children and adults for whom breathing is of vital importance. It is great to do good and together, we can make this world even better and brighter!
Nelya Brushko: "All this is for those whose life is a constant fight for every gulp of air, for the benefit of the people who are not seen and taken into account. But they exist, they need our help, they hope for it. I believe that we can help these people to breathe freely. My son has a severe innate disease of cystic fibrosis. We have an oxygen caddy at home for a long time already, and I understand how important this thing is, especially when there is a disease recurrence. I will be extremely happy if my participation in the Marathon will help at least one person to have this equipment at home".