"I’ve been putting off this letter, I wanted to give the opportunity to other kids to get help faster. My Irishka lives with cystic fibrosis. Our inhaler broke down with no chance to fix it, but without inhalations, she can’t live a single day... Can you help us?", Iryna's mom writes. We have known Irishka almost since her birth, and now she is preparing for school. She lives together with her mother, dad helps only partly. "Sometimes I fall down. I am a strong woman, but when it comes to my child... sometimes I panic. When there is support from the outside, it touches strongly and raises the spirit".
СF "Open Palms"Київ, вул. Полярна, 20, офіс 311
The Foundation works in the field of palliative care and provides:
- equipment and other type of support for children and adults who, due to temporary or chronic respiratory failure/oxygen deprivation are not able to breathe properly on their own. The Foundation’s operations include: a separate integrated program aimed at supporting children and adults with cystic fibrosis;
- equipment for pulmonology, intensive care, and other hospital units treating children and adults with respiratory and/or oxygen insufficiency, for hospices and palliative care units;
- advisory support for palliative patients (recognized as such that cannot be adequately treated) and their families on the issues related to pain killer prescriptions, home care, etc.
the program "Man needs a man", a special project: "letters of the angel" (friendly support for children who are being treated for cancer in the city of Kiev).
Since the beginning of the year, five members of the family have received surgery. Since her birth, the fourth member – Alionka – lives with a severe incurable illness, cystic fibrosis. It’s possible to live with it even more than a dozen years, but only under the condition of complex therapy. Only the drugs that currently aren’t included in public purchasing require 7 thousand UAH per month. In addition, special high-calorie diet, medical equipment, and consumables are needed for it. For now, the family is financially exhausted, they need help today as never.
DO IT is a charity project of HR Network company aimed at providing equipment for Ukrainian hospitals, where children and adults with respiratory problems receive help. Now we are opening a new project for the pulmonology department of the Khmelnitsky regional children's hospital.
On all the photos Kostia smiles. Does anyone guess that every morning of this guy starts more than seriously? His reality is to wake up not only from the sound of the alarm clock but also from the fact that it is difficult to breathe... Kostia was born with cystic fibrosis and every morning he must "reopen" the lungs to breath, making a series of inhalations and physical exercises that clear the respiratory system. There is no other way. That’s why today his mother dared to ask for help – to pay for Kostia’s medical equipment, which will help him to breathe and live, and smile.
Anna-Maria is an unusual girl, mother’s princess. To the last her mother hoped that the terrible word "cystic fibrosis" – is not about them, is not about her crib, the smallest of the three daughters. She could not believe. But there's nowhere to hide: a DNA break that causes a serious illness was transmitted to the baby during conception, and now it depletes the girl’s body. You can fight with it; you can live with cystic fibrosis. But it is expensive. The mom is asking for help in purchasing a set of medical equipment for daily treatment, specialty foods, and medicines.
Despair, anger, weakness... When a child is born with an incurable disease, you experience a storm of feelings. But you need to accept the reality and to learn to live with it. Baby Angelina has cystic fibrosis – this disease affects the whole body, damaging the vital functions: food digestion, growth... breathing. With cystic fibrosis, people can live a long life, but all the necessary support is expensive. And the girl wants to live, to dance and sing! And the girl wants to go to the 1st class in September! And you need to be in time.
Maxim always says that he'll manage on his own, he says that others have a greater need. He rarely accepts help, and this might be the first time that he actually asks for it. This young man was born with a severe incurable disease and he literally has to fight for each day of his life since the moment of his birth, and this is quite an expensive battle. More often than not, he has to pay for his medicines from his own pocket – the state budget can't afford it, but he cannot postpone his treatments. The next inpatient treatment is scheduled for December, and now Maxim asks to help him cover the cost of IV therapy drugs crucial for his life.
8-year-old Vika doesn’t get on not only with her school but also with a series of her hobbies such as drawing, dancing, needlework... And very often she doesn’t manage with hospital too. She was born on 28th of September, 2010, then she underwent surgery operation when she was only 3 days old; she was a patient of intensive care unit for several times during the following years. Moreover, she has to undergo regular special treatment once for several months.
Nastia, a second-grader, has had to grow up faster than her peers. She likes school, but she often has to spend time in the hospital instead, because she has a severe congenital disorder. At her young age of seven, she knows what it's like to fight for every single day of her life. Her diagnosis – cystic fibrosis – is an illness with which one can live for many years, but only if one has personal medical equipment at home, takes multiple medications every day, and does several sets of exercises every day as well. Her parents, unfortunately, cannot afford all the necessary medications and equipment.
UPD: unfortunately, Dmytro could not escape from the clutches of the disease. She was stronger and took the man. We offer our sincere words of condolences to Dima's family and thank all the UBB donors who supported him.
"It all started with a sudden high temperature. It's not terrible - with my diagnosis this is common”, I was thinking. But not this time. The disease recurrence led to a hospital - for the fourth time this year – I had to take expensive antibiotics intravenously and had an additional supply of oxygen. The acute condition finished, but I was still chained to the oxygen machine - I cannot go outside without it, I suffocate,” Dmitriy writes. But it is not the end, not a final verdict. The boy will be able to continue to have active life, if one can purchase a portable device.