Dima needs the help of an oxygen concentrator to breathe freely. He has already received one device from the fund before, but now it is not enough – Dima needs a more powerful one. An evil disease lives inside Dima and gradually destroys his lungs, breathing becomes increasingly difficult for him, especially during exacerbation of lung infections.
310 894 324 UAH
СF "Open Palms"Київ, вул. Полярна, 20, офіс 311
The Foundation works in the field of palliative care and provides:
- equipment and other type of support for children and adults who, due to temporary or chronic respiratory failure/oxygen deprivation are not able to breathe properly on their own. The Foundation’s operations include: a separate integrated program aimed at supporting children and adults with cystic fibrosis;
- equipment for pulmonology, intensive care, and other hospital units treating children and adults with respiratory and/or oxygen insufficiency, for hospices and palliative care units;
- advisory support for palliative patients (recognized as such that cannot be adequately treated) and their families on the issues related to pain killer prescriptions, home care, etc.
Ivano-Frankivsk is the Ukrainian cradle of the palliative care. All specially trained doctors and nurses, who can take care of seriously ill people during last period of their life, study here. Everything about how to help a suffering person is known here, they work with love here. But something important is missing. The staff of the Ivano-Frankivsk Regional Palliative Care Center asks for additional oxygen devices: there are not enough of them.
How to live after discharge from hospital "to the place of residence"? How to prepare home place for the arrival of the patient? Is pain relief really available? How not to tear your back while caring for a bed case? How to survive the terrible? Anastasiya Leukhina and her team have prepared a unique guide book. Here are specific recommendations from the experts, tips "what to google?", and also a variety of real stories of the people who have already experienced this. And this book turned out to be not terrible, but a book of support, a book of love.
At the beginning of the quarantine, we bought up the last oxygen concentrators we could find in the country. Our fund gives them free of charge to seriously ill people who cannot breathe normally on their own. Cancer and metastases in the lungs, pulmonary hypertension and the other fibrous changes in the lung tissue that eventually cause suffocation – and now the coronavirus, which also attacks the lungs. Since March, it has become almost impossible to buy oxygen devices – deliveries from abroad have stopped.
How to help young parents whose child has just been diagnosed with a serious disease? How to provide urgent help to a baby? Parents need at least a little time to recover from the news. But when a baby is born with cystic fibrosis, time can be critical. The disease from the first day begins to destroy the body, it must be stopped as soon as possible. Our foundation advises such parents on the arrangement of home treatment and provides them with special "baby boxes" – a set of quality medical equipment necessary for daily procedures.
The condition is now very bad, lungs are clogged, Dasha suffers from shortness of breath, nighttime attacks do not allow her to sleep... The girl urgently needs a course of antibiotic therapy for a long time. It will suppress the infection, and then Dasha will be able to breathe normally again. Despite the difficult quarantine conditions, the family agreed the possibility of hospitalization with the doctor. Dasha's condition is so serious that it is impossible to delay the treatment. This treatment can be started now, but there are no medicines at the moment. The girl needs help urgently.
For almost a year Artemko cannot eat alone. His body can do almost nothing – neither serve itself, nor simply raise vertically, his has the infant level of development. Artemko feels the world. And it depends on the people around him whether he will suffer or smile. In particular, the boy critically needs special food, 10 jars of Resource Optimum a month are his breakfasts, lunches and dinners, without them – death from starvation. Diapers and receiving blankets are necessary to make it easier for the parents to care for their baby when it comes to hygiene. Your support is required.
At the age of 11, Angelina weighs 23 kg. The little girl has been fighting a serious disease all of her life and she hardly has any energy left to grow. The disease called cystic fibrosis affects her digestion and food absorption processes. Firstly, CF patients require special diet that includes high-quality nutritional products, and there are times when the girl has to do without them, since her family honestly can't always afford it. Secondly, Angelina must take enzyme products with every meal, otherwise, she won't be able to eat at all. Thirdly, even if the first two requirements are met, they're not enough to provide for her growth – the girl also needs to receive special high-calorie products. We ask that you help Angelina's mom stock up on these products to get them through winter.
Right now you can become a good wizard who saves children from mortal danger. And there is no exaggeration in it. The main enemy that kills patients with cystic fibrosis is pulmonary infections. They reproduce well in the airways of such children, and it is very difficult to drive them out. It is necessary to have treatment with powerful antibiotics, and it is expensive. In addition, regular sterilization of all the equipment of an ill child helps to fight the infectious agents. Most moms just boil it in pots. But this is not a way out, this way is not good enough. Our children need sterilizers.
Denys is gradually losing his hearing. It’s very scary to be immersed in silence having lived all one’s life in the world of sounds. Scary and... just uncomfortable. Denys is a young man, works as far as the disease allows, tries to be as independent as possible. And suddenly the deafness came. This is the price that Denys had to pay for his life. Powerful antibiotics for suppressing Pseudomonas aeruginosa are ototoxic, but there was no choice. Today Denys is alive. And he needs to get earphones for both ears so that the world does not become complete silence for him.