Denis is 31. He is a grown-up person. And, you know, it's a challenge for a person with cystic fibrosis to live to 31 here, in Ukraine. The disease affects the entire body, disrupts the assimilation of food and liver's activity, affects the lungs severely, taking away the ability to breathe. Celebrating your 30th anniversary means working hard for three decades: daily therapy, inhalations, huge portions of drugs and continuing running for money to buy all mentioned above... These are endless hospitalizations for intravenous therapy, needles in the veins... failed tries to find veins... and the frightening “there are no more veins”. And you should never forget that medications in time mean life itself.
234 654 346 UAH
СF "Open Palms"Київ, вул. Полярна, 20, офіс 311
The Foundation works in the field of palliative care and provides:
- equipment and other type of support for children and adults who, due to temporary or chronic respiratory failure/oxygen deprivation are not able to breathe properly on their own. The Foundation’s operations include: a separate integrated program aimed at supporting children and adults with cystic fibrosis;
- equipment for pulmonology, intensive care, and other hospital units treating children and adults with respiratory and/or oxygen insufficiency, for hospices and palliative care units;
- advisory support for palliative patients (recognized as such that cannot be adequately treated) and their families on the issues related to pain killer prescriptions, home care, etc.
"He laughs and everyone around gets a positive energetic boost. He is a blue-eyed blonde who is impossible not to fall in love with", mom tells us about her son. Her beloved son, whose life is in danger. Denis was born with a serious incurable disease and the evil enemy lives inside Denis. Although now it is hardly noticeable externally you cannot forget about it even for a day. In order to maintain health for as long as possible, now it is extremely important to follow all medical prescriptions. But the family does not have enough money to pay for all necessary.
Our wonderful group of 7 persons is a small part of the Order of Saint Sneaker (OSS). Knights of our Order participate in the races, marathons and even ultramarathons. We also organize our own fan races and trails, such as New Year's Eve, or T.H.Shevchenko's Birthday, which anyone can join. We are always ready to support anyone who wants to run and do it with pleasure.
lad has trouble – his inhaler has been broken. The inhaler has been worked for 5 years, it was repaired for several times and now it works “once in a while”. Vlad can not use it this way. The boy has a serious illness, which clogs the airways with thick mucus, destroys the lungs, and prevents breathing. Every day Vladik must at least twice perform an extensive medical complex of inhalations and physical exercises, without which he cannot breathe. The absence of an inhaler is a complete disaster.
Yurko suffers from almost extremely low weight – this is how his inborn disease of cystic fibrosis affects his body. Food absorption is complicated, every meal should be accompanied by a whole handful of pills that help digestion, but this is not enough. Last year, we raised money together and paid for Yurko a half-year supply of special high-calorie food – and this helped. The boy gained about 4 kg in weight, had more strength to survive the fall and winter with their frequent colds and outbreaks of infectious diseases. A year has passed and Yurko needs help again to survive the next winter.
On all the photos Kostia smiles. Does anyone guess that every morning of this guy starts more than seriously? His reality is to wake up not only from the sound of the alarm clock but also from the fact that it is difficult to breathe... Kostia was born with cystic fibrosis and every morning he must "reopen" the lungs to breath, making a series of inhalations and physical exercises that clear the respiratory system. There is no other way. That’s why today his mother dared to ask for help – to pay for Kostia’s medical equipment, which will help him to breathe and live, and smile.
DO IT is a charity project of HR Network company aimed at providing equipment for Ukrainian hospitals, where children and adults with respiratory problems receive help. Now we are opening a new project for the Center for the care of patients with cystic fibrosis in the city of Rivne.
It is neither a capital city nor a regional center. Nova Kakhovka. This city is the center of a district and has only one Central City Hospital for everyone – both children and adults. They are asking for our help in buying an oxygen concentrator for their pediatric unit. This unit treats children with asthma, bronchitis, pneumonia, and cystic fibrosis. But this unit does not have any oxygen available. And that is just simply wrong, for the children to be taken to ICU simply "to take a few breaths" or to have to go to the regional center for the same purpose. The regional center, by the way, is about 55 miles away. Given the "excellent" state of our roads, that is at least an hour's drive. Can you imagine having to ride for an hour, gasping for breath? We don't even want to imagine it, we want to act.
"This is a special baby! He has a rich inner world, he is very open and has a sincere and good heart. The son changed me, thanks to him I realized that true values in life are not material, but spiritual”, mother Victoriya writes. And at the same time, it must be admitted: without money her son's life is in danger. Ilyusha was born with a severe genetic disease, cystic fibrosis, which affects all organs, especially respiratory and digestive systems.
Despair, anger, weakness... When a child is born with an incurable disease, you experience a storm of feelings. But you need to accept the reality and to learn to live with it. Baby Angelina has cystic fibrosis – this disease affects the whole body, damaging the vital functions: food digestion, growth... breathing. With cystic fibrosis, people can live a long life, but all the necessary support is expensive. And the girl wants to live, to dance and sing! And the girl wants to go to the 1st class in September! And you need to be in time.