Mashunia is one of the smallest and one of our hardest patients. Her illness is very difficult and it takes a lot to resist it. But Mashunya is tiny. In her 10 months she weighs only 6 kg. This is critically small, because the girl’s diagnosis leads to the increased vulnerability to infections (she has to fight against them constantly) and complicated digestion of food. It is impossible to balance the situation with ordinary food, especially, when the time plays against the baby. So all hope is for high calorie nutrition, Mashunya already ate it and it helped. It is now important to continue and provide a little special food for the winter, the most dangerous period.
245 236 650 UAH
СF "Open Palms"Київ, вул. Полярна, 20, офіс 311
The Foundation works in the field of palliative care and provides:
- equipment and other type of support for children and adults who, due to temporary or chronic respiratory failure/oxygen deprivation are not able to breathe properly on their own. The Foundation’s operations include: a separate integrated program aimed at supporting children and adults with cystic fibrosis;
- equipment for pulmonology, intensive care, and other hospital units treating children and adults with respiratory and/or oxygen insufficiency, for hospices and palliative care units;
- advisory support for palliative patients (recognized as such that cannot be adequately treated) and their families on the issues related to pain killer prescriptions, home care, etc.
"We need help so that we could free our patients..." says the director of the Volynsky Regional Hospice, in his letter to us. This hospice treats 180 seriously ill adults a year. Adults are all patients over 18 years of age. Some have incurable cancer. Some had a heart attack, others have heart failure or severe pulmonary failure. All these patients become very short of breath. At this time, the hospice only has two oxygen concentrators per 25 beds. People breathe "by the hour" – they have to wait for their turn, and then they have to give the concentrator to the next person in line and return to the hell of slow suffocation. We can fix this situation and free those patients of their suffering if we buy four more oxygen concentrators.
By this fall, the Katrusia family knew that the girl had a serious illness, but it had little effect on her life. Until Katya got really sick. She was completely white and was brought to the hospital with nonsurvivable oxygen levels in her blood. There were weeks spent in resuscitation and intensive care unit, Katya was on the verge, but stayed alive. Now she was dismissed home. But her lungs didn’t recover to the normal state. In order to feel good and not to have insomnia from shortness of breath, Katrusia needs the help of a portable oxygen concentrator. For an ordinary family from a small town, its value is very high. But the girl can't wait for her parents to raise money. She wants to breathe normally right now.
Sasha is 32 years old, his sister Angelica is almost 30, and they call themselves old-timers. In Ukraine, there are not so many adults over 30 with such a diagnosis as theirs. In Europe, exactly the opposite: almost everyone till 30 with cystic fibrosis survives and keeps on living. Such a difference appears due to the inaccessibility of high-quality treatment in Ukraine because they have to buy most of what they need yourself. Today the guys are asking for help. They lack medical equipment for a more active and better life.
Skateboarding tricks, a scooter, a bike, a swimming pool, a water park, karate… – this guy seems to have a lot of energy. Such a character – Denys is interested in everything, does not sit still, everywhere - among friends, is always busy with something. However, one character is not enough when the enemy of your life sits right inside your body. Since his birth Denys lives with a serious illness and every day has to do special exercises, take many medicines. The boy also needs special high-calorie food.
Misha is our old-old ward, probably one of the first. The boy was born with a serious illness and all his life is a daily struggle for his "tomorrow", a daily search for the ways to keep the illness under control without destroying the body. The daily inhalation is a prerequisite for Misha to breathe. The powerful Pari Sinus nebulizer with special nozzles is the only one that fits the boy’s needs right now. If he uses the usual device, he starts coughing up blood during the inhalation. Help the guy to protect himself from the disease!
"This is my only son, Zhenia. He is going on for 10 very soon, but he does not look his age. He is very thin because ordinary food is not digested correctly”, this is how the letter begins. Feeding her son is more than a challenge for Svetlana. Zhenia was born with a severe disease of cystic fibrosis. DNA mutations disrupt the normal activity of the whole organism and make digestion difficult. To grow the boy must constantly take special high-calorie nutrition, and this is almost 3 000 UAH per month.
"Hello! I am Andrii, I am 36, I'm married and live in the city of Kremenchuk, Poltava region. I have cystic fibrosis", these simple words mean an incredible thing, because 30 aged people with such a diagnosis are few in Ukraine. "I try to live actively, as far as my diagnosis allows. I am talking about many of my hobbies in the past tense: I enjoyed playing football, was fond of athletics, fishing, tourism...". The last year was very hard for the man and his health worsened significantly in spite of all the efforts.
Heavy disease – difficult rules, and there is so much desire to place life among them! The patients of our fund are girls and boys with severe liver disease of cystic fibrosis. Just to live, they have to make a lot of effort. This time, we want to buy portable inhalers, which will help them feel easier, not to be tied to their homes, to be free.
Liza is so joyful, full of enthusiasm and dreams. It is weird to write about her on the page raising money for serious disease treatment... Drawing, children's fitness, bicycle, and rollers. She likes to visit children's entertainment centers, to help her grandmother and grandfather in the household. It's all about her. Procedures in the morning and in the evening, taking a lot of pills, special food, and special exercises every day during all her life is also about her, about Liza. The girl was born with a serious genetic disease and she needs help to live.