Olya is very sick. The exacerbation of her lung infection means that she needs to be urgently hospitalized for a course of IV antibiotics, there is no other way to treat this. Nowadays, Olya is fully dependent on her oxygen concentrator, because her lungs are badly damaged. This happened because for the entire 34 years of her life, Olya did not receive the correct medical treatment--no-one knew what her diagnosis was, or what needed to be done; and all this while, her lung tissue was getting destroyed. Finally, she has the diagnosis and the correct orders for treatment. Treatment will help to bring this infection under control. Olya will be able to breathe more easily, and to feel better... Except that she can't afford to pay for this treatment. And every day that the treatment is delayed can result in more irreversible damage. In June of this year, Olya had the DNA test done and found out from it that she has cystic fibrosis. Cystic fibrosis is a genetic illness which distorts the function of all the person's organs and body systems. Lungs are especially vulnerable; they get infections which become chronic. It is very difficult and in many cases, even impossible, to fully get rid of these infections. However, courses of potent modern antibiotics can help contain the damage from these infections.
260 246 094 UAH
СF "Open Palms"Київ, вул. Полярна, 20, офіс 311
The Foundation works in the field of palliative care and provides:
- equipment and other type of support for children and adults who, due to temporary or chronic respiratory failure/oxygen deprivation are not able to breathe properly on their own. The Foundation’s operations include: a separate integrated program aimed at supporting children and adults with cystic fibrosis;
- equipment for pulmonology, intensive care, and other hospital units treating children and adults with respiratory and/or oxygen insufficiency, for hospices and palliative care units;
- advisory support for palliative patients (recognized as such that cannot be adequately treated) and their families on the issues related to pain killer prescriptions, home care, etc.
When Irina got very sick and had to be admitted to the hospital, she was gasping for breath. At that time, she needed the supplemental oxygen 24/7. Treatment helped, and her condition gradually improved, so she hoped she would not need oxygen long-term. However, her lungs did not fully recover. "Cystic fibrosis, respiratory insufficiency stage II, multiple bronchoectases, chronic cor pulmonale, and pulmonary hypertension" the long list of diagnoses in her medical chart shows that her body has lived on the edge of impossibility for a long time and has exhausted its reserves. At this time, Irina needs to use the oxygen concentrator at night--it relieves severe hypoxia and lets her lungs rest.
Igor is 26 years old, he is young and cheerful. He has a job, and a college degree; he likes doing continuing education seminars and webinars, and he dreams of starting his own family. Igor knows the value of time. When you live with serious and incurable illness since birth, you get used to fighting and to fill your life with meaning. Igor's illness damages the lungs, and every cold season with its usual upper respiratory infections is especially dangerous to Igor. At this time, he really needs an intensive course of IV antibiotic treatment. It will lessen the risk of severe exacerbations of his illness during the winter and will help him live on. "I have a dream of living as long and as interesting a life as possible," says Igor, but to accomplish that, he needs our support, and the time is short.
Powerful Pari nebulizer, the only one that is suitable for cystic fibrosis patients and is absolutely necessary for them to survive, is expensive and is purchased once every 5 years. The consumables for it are not so expensive, but if you multiply their price by the number of units required for the entire period of use of the nebulizer, then the sum will be even greater than the cost of the device. It is impossible to use it without consumables and the quality of treatment degenerates without their timely replacement increases the risk of infection. Without daily inhalation, a person with cystic fibrosis cannot live, suffocates.
Right next to us, there is another world. A world in which there is a large risk that one's life will end before one grows up. A world in which feeling all right is not a normal thing but a luxury, for which one must pay a large sum of money every month. It is a world of daily constant work, and whether you will wake up in the morning or stop breathing overnight depends on doing this work. It is a world of a rigid daily schedule, any deviation from which can result in a premature death. It is a world of people who have cystic fibrosis. And they cannot survive without our help.
Artyomka is 13 years old and today he critically needs special nutrition. The boy cannot eat without additional help for 7 months. Doctors installed him a gastric catheter. He needs 10 cans of Resource Optimum per month to gain weight and just live. The boy simply has no other way to eat. He also has to use a lot of diapers. For his parents, the cost of everything that is necessary is unjustifiably high and it is simply impossible to cope without help. This family really needs you.
Denis is 31. He is a grown-up person. And, you know, it's a challenge for a person with cystic fibrosis to live to 31 here, in Ukraine. The disease affects the entire body, disrupts the assimilation of food and liver's activity, affects the lungs severely, taking away the ability to breathe. Celebrating your 30th anniversary means working hard for three decades: daily therapy, inhalations, huge portions of drugs and continuing running for money to buy all mentioned above... These are endless hospitalizations for intravenous therapy, needles in the veins... failed tries to find veins... and the frightening “there are no more veins”. And you should never forget that medications in time mean life itself.
"We really need your help", Julia, the girls' mother, writes in her email to us. For the last 15 years, the most important thing in her life has been fighting for her two daughters. Sisters Lera and Sasha were born with a serious genetic disorder. To keep this disease in check and not to let it destroy one's body, one needs a great deal of effort, work, and money. Some of the medically necessary things are paid for by the government medical programs, some of them Julia pays for, but it is impossible to afford everything without the help of caring people. When one child is seriously ill, it is a difficult situation; when both children are seriously ill, the situation is twice as difficult. Please help us support this family.
"We get almost all medicines provided at the budget cost, but we have nothing from the equipment except for the old inhaler. There are no even bags to go to school", says our coordinator based on the conversation with Ruslan’s mother. This means that the help is urgently needed. The quality of daily treatment and the risks of developing serious infections and their complications depend on the availability of the equipment. Whether Ruslan's life is a long one depends on it.
Young Maksym lives near the front. In his small village, the electricity gets turned off 2-3 times a week. And for Maksym's family, that is not merely an inconvenience. Maksym has been living with a serious illness ever since he was born. This illness damages the entire body, and most of all, it damages the lungs. Maxim needs nebulizer treatments, every morning and evening, and sometimes in the afternoon as well.