After another ultrasound, the doctors prescribed surgery for the mother. So were born Tymosha. Mom heard the baby crying, put it on the chest of the Pope. But then everything was a blur... On the third day, the boy appeared convulsions, he was taken to the intensive care unit. Then there was a neonatal unit. Tymosha he did not eat, did not move hands and feet, did not open her eyes...
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The girl has not opened her mouth for seventeen years. Sofia-Maria cannot eat normally, talk, brush her teeth, smile. She has a rare congenital malformation of the jaws – the bones of the joint are fused, so the slightest attempt to open her mouth brings unbearable pain. Recently there appeared a chance for Sofia-Maria to smile for the first time in 17 years. And the name of the chance is "titanium endoprosthesis of the jaw joints". Her case was called atypical. Doctors only advised to somehow adapt to the disease and live on. Dozens of specialists, 4 surgeries and no results.
Little Milan is nearly 5 years old, half of which was spent in the search of a correct diagnosis girls. And it all started when Milan was 2 years: at one point the girl started to shake, the next day the girl became hysterical. This condition arose every day, but each new day with renewed vigor.
The extraordinary story of Arina is known to many of the subjects of TV channels, speeches of MPs from the rostrum of the Verkhovna Rada, flash mobs for rescuing a child in social networks. Arina is a unique baby. She was born with a "broken" gene, Batten's disease. It is an orphan disease, and at its age, patients hardly survive, so Arina’s brother died of the same rare disease. Parents will not give their ailments to their daughter, and for more than 4 years they have been seeking rescue – and this is Brineura, which is injected directly into the child's brain twice a month! All her life!