Preschoolers Nastusya and Timofiyko, schoolchildren Sasha and Vitaliy, students Denis and Yana – what unites them? All of them were born with a genetic disease, cystic fibrosis. This is a rare disease, which is strikes, first and foremost, in the lungs. Abnormal thick mucus blocks the lungs, causing severe infections that provoke obsessive coughing, pneumonia, bronchitis and other complications.
- 48 600.16 UAH
List of Donors, Blogs
This babe with an unusual name – Milena – was in such a hurry to appear in the world that she was born before the deadline. The 940-gram girl had a hypoxic-ischemic brain injury, so 2 weeks after her birth, Milena was on artificial ventilation. Then there were a long 2 months in kuvez.
"It'll soon be a year that I haven’t left my room, for behind its doors there's this sickening feeling of shortness of breath. And I'm just 21 and eager to live. I was stable till 17 years of age – I went to school, attended many sports sections. Ever since I'd been diagnosed with a genetic disease of cystic fibrosis at 5 years of age I've been adhering to a strict daily schedule – a bunch of pills, inhalations, breathing exercises, antibiotics… This has helped me to keep on for quite a while." Igor is an adult, he's already 21 and he doesn't need mediators to speak on his behalf no longer, he communicates with his doctors and various foundations on his own.
What a happiness it is to live near the warm Sea of Azov! Without a doubt, where the sea breeze and the warm tender sun, the cheerful, smiling and happy children are born. Almost at every photo, Sasha Ostrovskyi has a sunny, joyful smile and a spark in his eyes and in there is a great desire to share emotions and children's thoughts deep inside. And how many questions arise in children's heads, while they grow up! And what to do when you can not ask, because you simply do not know how to speak physically. It remains only to observe, smile in response or use sign language.
Dear donors, you have already supported Lerochka Malyshko. Unfortunately, the girl needs support on a permanent basis. Her routine is “Hospital – Home – Hospital” – that is the reality for the young girl. She suffers from profound congenital X-factor deficiency of blood clotting, in other words, hemophilia is her diagnosis. That is the disease accompanied by frequent continuous uncontrolled bleedings that constitute life-threatening situation. Commonly this disease occurs mainly with men but Lera has a rare “girl’s form” – she is the only patient in Ukraine who has such a diagnosis.