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HEALTH

Drozdovy brothers: win cerebral palsy!

Kharkiv

стартував 25.6.2019

Проект здійснює
ICF "Center of social projects of the future"

On February 15, 2016, at the 29th week of pregnancy, Natalia Drozdova was born with twins – Ivan 1,420 kg 40 cm and Danylo 1,470 kg 38 cm. From the operating room, the boys were taken to the neonatal intensive care unit. And from that moment on, the life of mom and dad changed drastically. The condition of the children was regarded as difficult. Respiratory failure due to immaturity. On the 7th day of life, pulmonary hemorrhage occurred, transfusion of blood components was done, the health state was severe. The most terrible words for parents: "The health state is consistently heavy".

Many attempts to remove from the ventilator (mechanical ventilation) were not successful, either the lungs stuck together, or it was not possible to breathe. The boys gained weight, grew, but they couldn’t separate from helping devices. When pneumonia was solved, the doctors came to the conclusion that at the moment one way out was a tracheostomy (a cut in the neck, in which a tube was inserted into the trachea, through which the babies breathe). In small steps, the twins crossed the tracheostoma. The boys were decanted (the tubes were removed): Ivan on November 2016, and Daniel in August 2017.

But because of the long stay on the ventilator (6 months), and also because of tracheostomy in the necks, the children have lost a lot in the development. The two sons have a diagnosis of cerebral palsy, spastic tetraparesis, psycho-speech, and stat-kinetic developmental delay. Now every two or three months they need to have rehabilitation, between treatment they need to undergo a massage and physical therapy courses, as well as work with them every day. All this is not enough, and the family needs serious treatment and constant rehabilitation with good specialists. Doctors give positive predictions with proper and timely rehabilitation. Yes! The treatment is long and costly, because not all rehabilitation centers are free.

"We have already grown up and we are being taken for treatment in the Tomatis center in our hometown of Kharkiv. The boys will take courses: sensory-sound stimulation "Tomatis", Sandakova massage, bioacoustic correction, hypnotherapy, sensory integration, speech therapy massages, therapy dropped (sensory room). But, unfortunately, the relatives themselves are not able to pay for the course of treatment in the rehabilitation center for two. I never thought that I would have to ask for help from friends and complete strangers for the treatment of my children... it was not easy to decide on this... But as parents, we must do everything possible and impossible to put them on our feet and bring them closer to independent and full life", says mother Natalia.

 

Name: Drozdov Ivan and Danylo, 15.02.2016

City: Kharkiv

Diagnosis: cerebral palsy, spastic tetraparesis

 

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Letter from Operator of Help


Certificate of birth


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