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HEALTH

Time is running out. 3

Dnipro

started 16.7.2019

Project is realized by
СF "Hope and Belief"

Ira defeated leukemia, but the threat to her life remains. At the age of 5 years, Irochka Zub underwent the most difficult trials of leukemia treatment and became the winner! The little girl spent almost a year in the hospital walls. During this time, two protocols and six most difficult high-dosage chemotherapy blocks, 13 lumbar punctures, 63 blood transfusions, and a thromboconcentrate, 10 sessions of irradiation of the sheaths of the brain have passed. There were complications, each of which could be fatal. Until now, her mother with a shudder recalls sepsis after the first block, anaphylactic shock from asparaginase, intestinal paresis, vincristine pain, not released in time 5-cubic methotrexate and zero leukocytes for 10 days against the background of bone marrow...

It is such an extreme treatment that increased chances for Ira to have a relapse-free, which means a long, happy life! After experiencing during the treatment of the daughter in the Tooth family, there was a reappraisal of life values. Since then, they have been enjoying each new day, and real happiness for us is to see our living child near. Currently 4.5 years of remission of leukemia. Days go by days, but Iryna’s health is poorly restored. The girl finished 3rd grade, but so far everything is also homeschooled. Frequent acute respiratory viral infections with inflammatory complications on the background of immunodeficiency, acetonomic crises, pain in the joints, general weakness and fast fatigue - all this makes it impossible to go to school and lead a fully active life.

The family Zub each time anxiously awaits the results of the Irochkoy blood tests. What is the level of hemoglobin and platelets, has it decreased?.. But despite the fact that the indicators were in order, the mother understood that something was not going right... Ira began to lose hair. Doctors suspected iron deficiency alopecia. The result of the analysis shocked the parents. The subsequent genetic screening in the Kyiv laboratory revealed hereditary hemochromatosis in Ira, a rare disease when the body accumulates iron pathologically. At the same time, the liver, the heart, the pituitary gland will be damaged... But if carry out timely treatment - the result is usually good, the life expectancy is no different from a healthy person.

In children, this disease is extremely rarely diagnosed, because iron accumulation occurs over many years and the first signs of organ damage appear in adulthood. But Ira was especially “lucky”: in the treatment of leukemia, she suffered more than 25 transfusions of donor blood, and all this iron was left in her body. The only way out today is Exijad, which removes iron from the body. Treatment should begin as soon as possible in order to reduce the critically high level of ferritin until the damage to the organs becomes irreversible.

The Exijad is very expensive. Ira's family has not yet had time to financially recover from the fight against leukemia, and now again it is necessary to overcome a new ordeal. Despite the help of relatives and friends, they do not have the opportunity to purchase Exjade. A treatment to be long. Already it needs 3 packages of the drug for the total amount of 38 520 UAH. The mother asks for help and believes that kindness will help Ira survive this time.

 

Name: Zub Iryna, 11.08.2009

City: Dnipro

Diagnosis: acute lymphoblastic leukemia, L1, common, high-risk group (from 11.27.14) Condition of remission. Secondary encephalopathy. Hereditary hemochromatosis

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Funded 38 520 UAH.
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aninimouse

Anonymous help

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Date: 26.08.2019 08:08:54


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Овчаренко Ірина

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Выздоравливайте

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Нехай одужує!!!

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Желаю скорейшего выздоровления!

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Letter from Operator of Help


Certificate of birth


Invoice


Invoice 2


Extract from medical record 1


Extract from medical record 2